Post by ButterflyLady on Mar 19, 2015 19:34:04 GMT -5
As April approaches, we face the "blue lights blues". We need to never stop educating.
"Ask how you can support their efforts. Look for programs in your town that support autistic people and their families and ask them how you can help.
But please, please don’t Light it up Blue. No matter how much we might like to believe that our good intentions are illuminated by those lights, they are inextricably tied to a message of hate, fear, demonization, and dismissal of the very people we aim to help."
Autism Speaks started this trend, in order to raise "awareness" when what Autistics, such as myself, need is acceptance, not awareness. Autism Speaks seeks to "exterminate" autistics, and find a way to prevent more autistic people to be born. The only research they support the s to detect autism prenatal in order to prevent that birth. They call autistics " broken and burdens" to their family, friends, and society. I am not broken! Please help me to spread the word that Autism Speaks doesn't speak for autistic people, I and others, have our own voice. Only 4% of what Autism Speaks collects actually goes to the families of autistic people, not for the autistics, but to help lift "burden" off the families shoulders. Because of Autism Speaks propaganda, there have been numerous autistics killed by their family and Autism Speaks has openly spoken that they don't blame the families, they blame the autism. What many don't realize is, Autism isn't a disease to be cured, it is a difference in thinking, a difference in how our brains are wired. Just because we are different, doesn't mean we are less.
Sorry for rambling. I have been fighting this battle too long alone.
It must be April, because my news feed is littered with calls for people to "Light it up blue for Autism Awareness".
To be honest, it makes me cringe.
There are heaps of "Autism Awareness" going around. It's what causes students at my kids school to "joke" and "tease" by saying things like.... "don't do that, it makes you look Autistic."
No. My kids don't need #AutismAwareness -- they need #AutismAcceptance.
Acceptance is different than awareness. Acceptance means that everyone is worthwhile, no one's neurology is made fun of, and everyone gets the support they need without having to fight legislators to provide it.
This April I'll be advocating for Acceptance. I won't be supporting the Autism Speaks driven light it up blue campaign that raises money to research to find a cure.
I won't be buying a Build-A-Bear blue bear so they can give money to Autism Speaks or Autism Awareness Australia either.
Here in Australia, many people have heard of Autism Speaks, but feel we are removed from their influence and do not need to weigh in on the stand against them.
I disagree. For two reasons.
1. I do not want Autism Speaks to assume that because Australians are not speaking up against them that they are welcome here.
2. We already have our own Autism Speaks here, in the form of Autism Awareness Australia.
Australians, please do not be fooled into thinking that we are safe from the Autism Speaks message here.
You only need to watch Autism Awareness Australia's awareness video to hear it:
The use of pathology-related language, such as "complex neurological disorder" and comparing Autism to AIDS, diabetes and cancer etc.
The "Autism is a tragedy" dialogue ("Improve the lives of families with Autism." "Autism is stealing the minds and personalities of a generation of Australian children." "Thirty-thousand Aussie kids have been kidnapped, by Autism." "Don't let Autism have the last say in a family's life.")
I will not support an organisation that sends out the exact same message Autism Speaks does.
I will not support an organisation that tells my family, friends and colleagues that my life is difficult because of my children and that their lives are hopeless unless people donate money to save them.
I will not change my mind about supporting Autism Awareness Australia until this message from them changes. Not even if you point out that they are doing a few good things along the way. The harm their message does to my children is real. The damage their message causes to the possibility of people accepting my children as valuable the way they are is immeasurable.
And this..... THIS ..... is why the "Autism as tragedy" message of Autism Speaks and Autism Awareness Australia is so damaging..... because it leads to this:
"When I am open about being Autistic, I am handing people a weapon to punish me with. This was not the first time that my autism has been invoked during a disagreement. I have ended up leaving so many communities because I was told that I was only disagreeing because my autism meant I didn't really understand. I have been told I am having an unreasonable meltdown when I am calm and polite but the other person is agitated and using curse words. Anytime someone wants to dismiss my opinion or experience, they point out that I am Autistic, as if that trumps anything and everything. They remind everyone that I am not reliable, that my word means nothing, that I don't understand anything.
Telling people that I am Autistic gives them the opportunity to understand me better. It also gives them the opportunity to dismiss anything and everything about me as irrelevant, deluded, pathological, unacceptable. No one has to provide a logical counter for anything I say because my words are Autistic words so they mean nothing. They are merely symptoms and can be disregarded." -- Sparrow, from Unstrange Mind.
Is this what you want for your children?
Really think about it -- how would you feel if we took a month of the year to promote that everyone be aware of you and the fact you need fixing?
Then let's change the message.
My kids don't need curing. They don't need fixing. They don't need changing.
It is society that needs to change, and acceptance of all is the key. More: Light It Up Blue Autism Speaks Autism Autism Awareness Autism Awareness Day Autism Month Autism Speaks Light It Up Blue World Autism Day
Last Edit: Mar 24, 2015 22:38:32 GMT -5 by Warwick
Post by ButterflyLady on Mar 24, 2015 22:51:18 GMT -5
Actually Build a Bear declared that they were no longer supporting Autism Speaks but I can't confirm that they actually pulled their funding. I did see #BoycottAutismSpeaks post that Build a Bear no longer supports Autism Speaks.
No one can teach me how to love again 'cause you left a permanent stain on my heart and I've been feeling it
Leading up to world autism day - @take the splat challenge - we challenge all our FB friends to challenge YOUR friends to Take the SPLAT CHALLENGE 'Light it up GOLD!" - post your quick seconds video and or photos on this page... please and pass around the world. Challenge will end April 2nd, on Official Kick-Off - ANCA World Autism Festival 6th annual event ANCA FB Social Media CHALLENGE! Send in videos or photos to this page - the CHALLENGE: Light up your head, face, hands, feet, or whole body GOLD! How you can make this challenge a success? Paint, paint guns, dye, gold water, wigs, it is all in the imagination and FUN! Challenge your MP's MLA's, MPP's, Mayor and Council members, local businesses, community members - friends and family. ENJOY THE CHALLENGE! LIGHT IT UP GOLD is the theme for Autistic People around the world, in the past two years, ANCA has encouraged people to send in photos of their LIGHT IT UP GOLD day on World Autism Awareness Day - last year the First Municipality in the world, Town of Gibsons lit up the town hall GOLD!